You said, we did
BANES PCF are committed to ensuring that our members voices are at the heart of our work – when you talk, we listen.
Read some of the outcomes that have come from your valued feedback.
You said
“EBSA is dealt with differently by GPs and schools.
New school guidance is affecting children with EBSA but no other diagnosis.”
We did
We conducted some joint research alongside Healthwatch to explore levels of understanding around EBSA.
The findings have now been published in the ‘Parent Carers Experiences of Children with Emotionally Based School Avoidance (EBSA)’ report.
You said
“My child isn’t getting the support they need, I am being told that the school can only put things in place for children with EHCPs.
We have been told by school that our child wouldn’t get an EHCP, so how can he ever get the support he needs?”
We did
We have worked with the LA, some SENCOs from local schools, educational psychologists and other professionals to co-create the BaNES SEND Commitment (formerly Ordinarily Available Provision).
This outlines what schools should be doing to support all children with SEND.
You said
“Once you have eventually managed to get a referral for an ASD assessment no-one tells you what’s happening. You don’t know how long you have to wait, what you could do to help your child when you are waiting or what the process of assessment entails. Once you start seeing professionals the reason for appointments isn’t always clear and each time you meet a different person, you have to start your story from the beginning again – you end up repeating it over and over.”
We did
Through the Autism Waiting List Initiative and as members of the Neuro Divergence Project Steering Group we were able to influence a whole new strategy and process for assessment for ND conditions. (The new strategy will be published soon).
You said
“The parental contribution to an EHCP doesn’t allow us to reflect what we want to say about our children.”
We did
We have re-written the parental contribution section of the EHCP paperwork, the re-write is now in use.
You said
“We have been told to attend ADHD courses for parents, but there aren’t any.”
We did
We ran an ADHD workshop for parent carers. There will be more in the future.
BANES PCF strive to drive change for our members and the wider community. We are here to listen.